Sleep Tight!!!!

DREAMING OF HEAVEN????

Little Monster

Well, Tenna's sisters could hardly wait till she could fit into these jammies.....she has made it.

Now they are all fighting over who gets them after she grows out of them.

We got a tenative scheduled date for her surgery. March 11.

We are trying to keep her healthy so we don't have to pospone it. But she is growing a little bit.

she is getting taller, not much weight gain, but on Sunday Feb 7th, she rolled from her belly to her back....She is growing up. I try not to wish her to grow too fast, but at the same time I want to see her make the milestones like she should.

We love her very much. couldn't imagine sending her back or giving her away. We love her to pieces, and she is the most spoiled little one i have ever seen....until she starts screaming!!!! Dannika doesn't know what to do with her when that happens. We cant figure out why she does...I think it is just fussy time in the evening (for the most part)

But We love her, and she has added so much to our house.

Febuary...Going on 5 Months Old

Well...I am almost 5 months...We are preparing for the surgery that will be scheduled the end of this month

I will be in Salt Lake for about a month while undergo my open heart surgery to correct the huge hole in my heart that hasn't closed up.

I am progressing very well.....except as you can see from the photo....I still don't eat from a bottle. Which frustrates mom very much at times.....but she realizes this too shall pass....in due time.

Tenna is almost rolling over and has found that she has hands....and her favorite thing...to suck on her thumb or fingers....they are her new second best friend (best friend her feeding tube)

I am certain that she has a magnet in her hand and the tube is metal, because if it is anywhere near her hand, shecan find.....and subsequently pull it out....several times a day in fact. WE have stopped feeding therapy till we are done with surgery. her feeding therapist didn't want to make some progress and then loose it because she will be gone for a month or so.

I am still very scared, but know that I cant change it....or change the out come...what ever it may be.

we will post more later..

keep watching

SMILE!!!

Just Me......

3 & 1/2 Months

Well,
Tenna is 3 1/2 months old. We went to the Dr yestrday, cause they were worried about her thyroid, Test came back normal. Which is very good. One more hurdle down. Who knew there were so many things you have to watch with down syndrome babies. I freak every time someone gets a cough or sick. and now I see on TV that adults should have the pertussis shot so that you dont give it to your baby who is still able to get it till they have had all 3 series of the shot. I have never been so concerned in my life.... She seems so fragile, yet at times so tough.
She is trying to roll over, not quite there yet, but very close. Her Dr was very happy with her progress and activity.
She still is very stuborn when it comes to learning to eat with a bottle though..... Doesn't want to yet..we may just go straight to solid food. Mom has had a very big lesson in patience.
We are still planning on surgery in Feb or March. Scary!!!! but with prayers and lots of faith, we will make it through. thats it for now. keep checking in periodocly!!!

Merry Christmas

Well, I made it to Christmas. Just 4 days before, I turned 3 months. So far, my sisters are having fun playing dress up with me and they spoil me rotten. I am doing feeding therapy, because i don't eat yet, (not that I cant, I just wont) Which makes mom very frustrated.
I can be very stubborn....Hmmm....wonder where I got that from..... MOM OR DAD????
Anyway, I am growing..starting to smile and really getting active. I got lots of toys & cloths for Christmas...Dad said "NO MORE CLOTHES". But Santa must not have got the message.
I have an appointment with my cardiologist in January, and that is when he will decide when my surgery will be. I go to physical therapy once a month and I am progressing very well. My physical therapist says I should be expected to keep up with any other kid my age...so we plan on it.... I don't get lack of therapy though....Dad makes me exercise every time he holds me, and Dannika makes sure she gets some of my exercises in too...I have great help at Home. I think they have decided to Keep me!!!!
So that is it for now... I will keep you updated periodicaly!!!!

Hi Everyone,

Look at me growing. I am now 6 weeds old and growing like a little week....OOPS! i get confused sometimes. I am still working on feeding...not doing too bad, and I am off oxygen (MOST OF THE TIME) I am getting spoiled rotten... you shoud stop by some time and help with the spoiling. I am getting big and strong enough now that if you are healthy, I can have company.

See ya soon,

Tenna :)