I will be in Salt Lake for about a month while undergo my open heart surgery to correct the huge hole in my heart that hasn't closed up.
I am progressing very well.....except as you can see from the photo....I still don't eat from a bottle. Which frustrates mom very much at times.....but she realizes this too shall pass....in due time.
Tenna is almost rolling over and has found that she has hands....and her favorite thing...to suck on her thumb or fingers....they are her new second best friend (best friend her feeding tube)
I am certain that she has a magnet in her hand and the tube is metal, because if it is anywhere near her hand, shecan find.....and subsequently pull it out....several times a day in fact. WE have stopped feeding therapy till we are done with surgery. her feeding therapist didn't want to make some progress and then loose it because she will be gone for a month or so.
I am still very scared, but know that I cant change it....or change the out come...what ever it may be.
we will post more later..
keep watching
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